Working with patient associations : the Fe.D.E.R. experience
Fe.D.E.R. (Federazione Diabete Emilia Romagna – Federation of Diabetics Emilia Romagna) in cooperation with the Emilia Romagna Region has launched a survey aimed at exploring the needs and expectations of diabetic patients using self-monitoring blood glucose devices.
We are proud to support this study with the tools of the lumos! platform.
Our Opportunity: Work with Patients, Caregivers and the Public Administration
When we were approached by Fe.D.E.R., they were very interested in exploring whether they could employ Lumos! for this project. The project had already received the support of the Emilia Romagna Region and the Regional Healthcare Service, and a questionnaire had been developed and approved by Regional authorities.
Our platform can easily be extended and tailored for special purposes, such as its employment as software for the needs of research studies that are carried out anonymously by email. This was the case of this project; lumos! was transformed into an open public survey tool with support of characteristics from studies (multiple follow-ups and cohorts).
Following discussions with the organizers of the project, several specific features have been added, such as the control of the number of submitted questionnaires, an automatic creation of QR codes and the ability to overview the process with the help of simplified reports.